Friday, February 23, 2018

A Trip Report

I've been home now for almost three days and am hoping that I have at last recovered from my trip to South Carolina for my niece's wedding.  As predicted, the whole weekend was not as easy for me as it was for others so I thought I would share some of my experiences:

  • I learned that a total of 32 hours of being a passenger in a car is, indeed, tough for one with arthritis.  Not only was I stiff, sore, and unable to walk correctly when we would stop to stretch our legs, but my joints and muscles throbbed and ached while I was simply sitting or attempting to sleep in the car.
  • I learned that if you stare at the myriad of  rash creams residing in your medicine cabinet at home and decide NOT to pack them, you will surely develop a rash on your chest while you are away.
  • I learned that bed partners are not thrilled with the groans that come from your side of the king-size bed every time you attempt to roll over - nor are they a fan of you uttering a few obscenities while hobbling to the bathroom in the middle of the night. And if you dare sit upright at four a.m. while trying to get rid of your unrelenting shoulder pain, your lovely bed partner will give you the cold shoulder and start muttering some obscenities himself.
  •  I learned that keeping up my eye protocol while traveling was nearly impossible, and even dangerous, as the moisturizing eye mask I heated in the bathroom sink proved to be too tight, causing me to experience vertigo - which in turn resulted in a fall in the hotel bathroom, a bump on the head, a nasty hematoma on my arm, and two instances of my infamous yoga pose of  "Woman with Face in Toilet Bowl."
  • I learned that staying back from some of the weekend's activities and pacing myself was the right thing to do, until I decided to lie on a recliner in a cabana with earbuds the next day while listening to a book.  Said earbuds caused the vertigo to return and I had to run back to my room and frantically resume my bathroom pose.
  • I learned that group travel to the rehearsal dinner and the wedding chapel itself via a rented bus makes for a very tough ride.  The stairs while alighting were painful, but it took both my husband and the bus driver to help me get back down again after the ride.
So I admit that these are the lowlights of my extended weekend, but there is one very positive thing I learned:

  • I learned that the desire to have fun, an innate love of dancing, along with a few glasses of Pinot Grigio (the best pain killer in the world) can help to overcome the aches and pains of daily living while at a wedding reception.  I distinctly remember thinking, "Wow, this hurts my wrist" as I continued to fist-pump to "Sweet Caroline" or "My ankles are killing me" as I danced to "Uptown Funk".   And while I couldn't stay on the dance floor for more than two songs without resting, I DID IT!  

           I danced like Cinderella transformed at the ball!  My shoes were not glass
           slippers, nor was that bus a horse-drawn carriage, but the ballet flats I
           picked out with such great care for my neuropathy actually felt alright on
           my feet, and so I danced. 

          I don't really care that celebrex, gabapentin, tylenol, and Pinot Grigio
          served as my personal Fairy Godmothers;  I danced!

For another very important thing I learned, you can read this


Tuesday, February 13, 2018

Travel: Easy for Some but Not for Me

I am traveling to Hilton Head Island to attend my niece's wedding this weekend.  It should be beautiful, and I should be looking forward to it.

So why am I so distressed? 

I am distressed because what is easy for most people is certainly not easy for me.  Perhaps it should be phrased this way:  I am distressed because what used to be easy for me, is certainly not easy anymore.

It all begins with sleeping in a hotel room.   Judging from last night's lack of sleep and numerous rude awakenings, I honestly don't know how I am going to do it.  Do I bring my two special pillows?  The only blanket my feet can tolerate?   I'll be sharing a bed with my husband and I'm certainly not used to that.  Holy crap!  He can sleep the entire night in one corpse-like position.  I'll be tossing and turning.   And sometimes I cry out in pain when I wake up either with joint pain or with my God-awful skin ache.

Then there are the events.  And the clothes.   The clothes to wear to the events.  What will my skin be able to tolerate?    I can't wear yoga pants and bamboo to a wedding.  

The shoes.  Oh, the shoes!  My beloved Allbirds and Uggs are not allowed in a wedding chapel.  I needed to spend all sorts of money finding new flats.  Forget about whether or not I can dance in them, can I walk in them?

And then there are the plans.  People golfing and shopping and touristing and eating out and beaching and - oh, I don't know know - all sorts of exhausting things!  What will I do?  I'll stay back at the hotel and sleep.

How is it I have come to this?

Identity theft has struck again.

Tuesday, February 6, 2018

Aaaaaaaah, But What's in a Name?

A little housekeeping item here. . .

I have changed the name of this blog from "My Sjogren's Life" to "Drying My Tears."

Of course that's what the name of this blog should be.  Of course.